Talk to your Dr. about the burden of acromegaly

Talking to Your Doctor

Ask the Right Questions

How you feel is about more than just your IGF-I and GH levels. No matter how long you have been living with acromegaly, it is important that you always have an open and honest discussion with your healthcare team to inform the right choices and treatments for you. Speak up and share your honest experience with your doctor. Some questions to ask yourself before your visit:

  • How do I feel on my current medication?
  • Does my experience vary throughout the month?
  • Do I experience side effects throughout the month?
  • Are some days throughout the month easier or harder?
  • What additional options exist for me?

AcroExperience Discussion Guide

Make the Most of Your Appointment

Keep in mind that the amount of time you have with your healthcare team may be limited. Prioritize a few topics that you would like to discuss.

Some topics that can help guide your conversation could include:

Prepare For Your Next Visit

This downloadable AcroSymptoms Tracker makes it easy to record symptoms on a weekly basis and discuss your real experiences with your doctor. This is especially important for people with acromegaly who may experience symptoms even when their IGF-I and GH levels are within a normal range.

Simply download the PDF, print it out and begin tracking the symptoms you experience. At your next appointment, bring the completed tracker to have an open discussion with your doctor or nurse. Ask what can be done, now and in the future, to improve the way you can manage your acromegaly.

AcroSymptoms Tracker

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Thank You

1. Geer EB, Sisco J, et al. Observed discordance between outcomes reported by acromegaly patients and their treating endocrinology medical provider. Pituitary. 2019 December 5. (doi:10.1007/s11102-019-01013-2) 2. Strasburger CJ, Karavitaki, N, et al. Patient-reported outcomes of parenteral somatostatin analogue injections in 195 patients with acromegaly. European Journal of Endocrinology, 2016. (doi:10.1530/EJE-15-1042) 3. Liu S, Adelman DT, et al. Patient-centered assessment on disease burden, quality of life, and treatment satisfaction associated with acromegaly. Journal of Investigative Medicine. 2017. (doi:10.1136/jim-2017-000570) 4. Biermasz N. New medical therapies on the horizon: oral octreotide. Pituitary. 2017. (doi:10.1007/s11102-016-0785-3) 5. Fleseriu M, Fogelfeld L, et al. Development of a novel patient-reported measure for acromegaly: the Acro-TSQ. Pituitary. 2019. (doi:10.1007/s11102-019-00986-4)