Patient Stories

The Acromegaly Journey

Hear other people living with acromegaly discuss their experiences managing their disease and their thoughts on how people can be their own best advocates.

Ellie, Wisconsin

Managing Wear-Off Effect

Casey, Utah

Living with Acromegaly as a
Chronic Condition

Amber, Ohio

My First-Hand Perspective on
Unmet Needs in the Acromegaly
Patient Community

Mike, Illinois

Valuing an Early Diagnosis

Charles, Massachusetts

Working in Tandem with Your
Healthcare Team

Ralph, Georgia

Real-Life Superheroes: Finding a
Strong Support System

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Thank You

1. Geer EB, Sisco J, et al. Observed discordance between outcomes reported by acromegaly patients and their treating endocrinology medical provider. Pituitary. 2019 December 5. (doi:10.1007/s11102-019-01013-2) 2. Strasburger CJ, Karavitaki, N, et al. Patient-reported outcomes of parenteral somatostatin analogue injections in 195 patients with acromegaly. European Journal of Endocrinology, 2016. (doi:10.1530/EJE-15-1042) 3. Liu S, Adelman DT, et al. Patient-centered assessment on disease burden, quality of life, and treatment satisfaction associated with acromegaly. Journal of Investigative Medicine. 2017. (doi:10.1136/jim-2017-000570) 4. Biermasz N. New medical therapies on the horizon: oral octreotide. Pituitary. 2017. (doi:10.1007/s11102-016-0785-3) 5. Fleseriu M, Fogelfeld L, et al. Development of a novel patient-reported measure for acromegaly: the Acro-TSQ. Pituitary. 2019. (doi:10.1007/s11102-019-00986-4)