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About Acromegaly Burden
Acromegaly presents a unique disease burden for patients. According to a survey of 195 patients managing acromegaly with SSA injections (also known as SRL injections), more than 70% of patients reported experiencing acromegaly symptoms despite treatment. The symptoms most frequently reported included fatigue, joint pain, headaches and excessive sweating.
There is a considerable burden on patients associated with chronic injections, and patients have reported the desire for treatment advancements beyond SSA injections¹
Take Our Acro Quiz
Medical researchers from Tulane University asked a group of patients and medical providers about their acromegaly treatment experiences. The results, found in a publication by Geer, et al., may surprise you. Click the link below to see if you agree.
Physician Resources and News
Get resources, view medical publications and hear from other healthcare professionals about how patients, endocrinologists and other healthcare professionals can work together to advance acromegaly care.
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Patient Stories
Hear real patients living with acromegaly discuss their experience managing their disease and their thoughts on how people can be their own best advocates.
Thank You
1. Strasburger CJ, Karavitaki, N, et al. Patient-reported outcomes of parenteral somatostatin analogue injections in 195 patients with acromegaly. European Journal of Endocrinology, 2016. (doi:10.1530/EJE-15-1042) 2. Geer EB, Sisco J, et al. Observed discordance between outcomes reported by acromegaly patients and their treating endocrinology medical provider.Pituitary. 2019 December 5. (doi:10.1007/s11102-019-01013-2) 3. Liu S, Adelman DT, et al. Patient-centered assessment on disease burden, quality of life, and treatment satisfaction associated with acromegaly. Journal of Investigative Medicine. 2017. (doi:10.1136/jim-2017-000570)